DURHANE WONG-RIEGER, PHD is President & CEO of the Canadian Organi-zation for Rare Disorders and the Institute for Optimizing Health Outcomes; she is Chair of Canadian Heart Patient Alliance.
She also serves on Canada’s Rare Disease Drug Strategy Implementation Ad-visory Group, Canada’s Rare Disease Network Steering Committee, RareKids-Can Clinical Trials Network, and Canada’s Newborn Screening Advisory Group.

Globally, Dr. Wong-Rieger is Chair of Rare Disease International, President of Asia Pacific Alliance of Rare Disease Organizations, Treasurer of UN NGO for Rare Diseases, Chair of Patient Advocates Constituency Committee of Interna-tional Rare Disease Research Consortium, and on the Editorial Boards of The Patient- Patient Centred Outcomes Research and Rare Diseases and Orphan Drugs Journal.
Durhane has a PhD in psychology from McGill University and was professor at the University of Windsor, Canada. She is a certified Health Coach and author of three books and many articles.